Vancouver, Canada 2015
9th Annual Meeting, September 10th - 12th
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Welcome!
18:30 Welcome Drinks Lift Bar & Grill 19:00 Welcome Dinner Lift Bar & Grill -
Sheraton Vancouver Wall Centre
8:30 Welcome and update membership Demetrius Maraganore 8:45 The LONG-PD Study: Longitudinal clinical and genetic studies of Parkinson’s disease Demetrius Maraganore 9:45 Break 10:15 GEoPD RVCD sequencing and genotyping project Matthew Farrer 11:15 COURAGE PD 12:00 Lunch 13:00 Data blitz epidemiology/clinical (7 speakers) Moderator: Jan Aasly 14:45 Break 15:15 Data blitz genetics/neuroscience (13 speakers) Moderator: Rejko Kruger 17:30 Adjourn 18:00 Steering Committee Meeting & Dinner Steering committee members only -
University of British Columbia
7:45 Bus departs from the Sharaton Hotel to University of British Columbia Hot Topics
Moderator: Christine Klein8:30 Epidemiology Beate Ritz 9:10 Genetics Christine Klein 9:50 Functional studies Rejko Kruger 10:30 Break & Posters 11:30 Unmet Needs/New Proposals/Suggestions 12:30 Lunch Alpha-synuclein, cognition and therapeutic possibilities
Moderator: Matthew Farrer13:30 SNCA and cognition in PD, PD-MCI, PDD, DLB & AD Matthew Farrer 14:15 PD-MCI Consortium Gert Geurtsen – Amsterdam 15:00 Web-based cognitive testing in PD Adrian Owen – University of Western Ontario 15:45 Break 16:00 Alpha-synuclein transmission in vivo Eliezer Masliah – UCSD 16:45 Alpha-synuclein lowering as a therapeutic approach Tracy Cole – Isis/Biogen 17:30 Wrap-up Demetrius Maraganore 18:00 Adjourn 18:30 Reception Museum of Anthropology 19:00 GEOPD Gala Dinner Museum of Anthropology -
Satellite Meeting: LONG-PD Study Investigators Meeting
8:30-12:00 Implementation and operational details of the LONG-PD study
LONG-PD study investigators only- Detailed review of the final REDCap form
- Designate required or optional forms or fields
- Develop a data dictionary to standardize coding of variables
- Designate biorepositories for DNA storage and genotyping
- Discuss MTA and IRB requirements
- Discuss enrollment targets and annual follow up requirements
- Discuss Best Practices for data transfer and cleaning
- Timeline to complete administrative requirements
- Timeline to start enrollment and follow up assessments
- Timeline for first genotyping and analyses
- Other discussion